I Freak'in Love Jenny McCarthy...

Oct 18, 2008 at 7:19 PM
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I don't buy magazines. I just don't. There isn't enough time, energy, and (these days) money in my life to read them. But I bought this one. I cried so hard and I fell even more in love with this woman and all she has done and is continuing to do to win the war on autism.

When critics blasted her for making her son a poster child for autism, she responded without missing a beat. "No, he's the poster child for hope," she said. Amen sister. You give me hope.

Go Green Vaccines!

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I was reading the "devastating diagnosis" post, and wow... does that bring back a lot of painful memories. We had our oldest son evaluated at the CDSA, too. We went in thinking they were just being overly cautious. We had gotten a referral there by our pediatrician when our son was 13 months old because he wasn't talking or pointing. After the long eval, I actually went back all by myself with my son to get the results. He was given "DD-NOS" (they left off the P) - and I remember holding it together through the entire meeting. But, driving home was a different story. I could barely see through the tears. The stack of informational papers about PDD-NOS and autism at my side. When I got home and my husband eventually arrived from work, he asked casually how it went. I just burst into tears again. After explaining everything - he said they were crazy. Our son was just fine. Lots of 1 year olds don't talk.

Well, fast forward and my son is now 4.5 years old. He was re-diagnosed with autism at around 3 and has an IEP. He didn't talk until he was 3.5. Over time, we realized that this was not a bad dream, this was not over zealous diagnostics. This was our life. It's been a long hard road - and the pain never goes away. It just gets a little easier to deal with over time.

I have 2 kids at the CDC. It's a wonderful school - and your son is sure to make tremendous gains. We also see Dr. Harum in Wilmington and follow a biomedical approach to his treatment as well. My middle son is the same age as yours - but I don't recognize him, so he must be in a different class. My son Garrett is in classroom 3. He was born 5/2/06. Perhaps they will be classmates next year!

You have a beautiful son, and I know that you are still reeling from the shock. If it's of any comfort to you, I have read through your blog and watched the little video, and he is so much farther along than my oldest son was at his age. PDD-NOS is better than autism. And, he very well may grow out of the diagnosis. Many PDD-NOS kids do.

If you ever want to chat, compare notes or just vent to someone who understands COMPLETELY what you are going through... I am here.

thereiderfamily@mac.com

Hugs,

Sara

I Freak'in Love Jenny McCarthy...

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